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Do you feel like you're constantly fighting? :(

Moms View Message Board: Parenting Children with Special Needs: Do you feel like you're constantly fighting? :(
By Mrsheidi on Monday, September 4, 2006 - 09:19 pm:

With Connor, it's like a *constant* battle. I feel like he doesn't have a lot of imagination to play with his toys and he wants to watch DVD's all day. Granted, he's sick again, but the meds are making him feel better and he's still asking for tv. We had to go to the hospital at 4am today, again, and we brought the portable dvd player this time. It was a lifesaver for the 4 hours we were there, but when we got back, he wanted to KEEP watching tv. UGH! (He's breathing better though and I'm going to ask the doc for some pulmicort from now on...they keep denying that he has asthma but I think it's pretty obvious.)
I've decided to just take the tv out of the living room from now on.
It also doesn't help that he won't drink his soy milk or yogurt since he's been on his new anti-dairy diet. To be honest, I haven't noticed any changes other than he's just more p!ssed off that he can't have his normal milk, cheese, and yogurt.
There hasn't been a day where I don't cry...
I wish he would talk, eat, and play like a normal child.
I can't take him to playgroups right now or have anyone take care of him bc he's sick.
Venting venting venting...exhausted...exhausted...exhausted...

By Cat on Monday, September 4, 2006 - 11:03 pm:

{{{{{Heidi}}}}} Vent away. We've all btdt and I know I'm still there quite frequently (like daily!)!!! Not the same issues, but issues all the same. Yes, it's exhausting. You'll get through this and a million other things. You're doing a great job, Mom, especially since Scott's gone and you're doing it alone! You're going to keep trucking along at this, too and continue doing a great job! I know you are. More hugs and vent any time.

By Tink on Monday, September 4, 2006 - 11:50 pm:

That sounds so so so much like Seth. I swear he tantrummed four or five times a day over the TV for a long time. I was so exhausted from just telling him "No" (about the TV, the foods he couldn't eat and the normal 2 year old issues) and dealing with the aftermath of it. I REALLY hope that the doctors will listen to you about his asthma. That's such a tough thing to deal with at his age and it's not as though you don't have enough other things to worry about. {{{Hugs}}}

By Mrsheidi on Tuesday, September 5, 2006 - 10:07 am:

Thanks, Cat and Tink...I hope they'll listen about the asthma too. My doc at Johns Hopkins is wonderful and seems to really trust the parents' instincts which is rare. It helps that she has a child Connor's age. I also hope she's able to give me some resources for his speech as well.
Thanks for listening...
OH, and Connor got up at 5am this morning...ugh. We went downstairs he kept asking for "elmo" but couldn't see the tv so he couldn't press the issue. I had to hold him a lot to "console" him. Poor guy just wants Elmo all day...LOL.
PS- Scott called at 5:30, after I had emailed him about all this...he's such a good guy. He only gets one phone call a month and it couldn't have had better timing. :)

By Truestori on Tuesday, September 5, 2006 - 10:12 am:

I remember when my kids were this little. It is so frustrating! I would cry, and feel like such a bad mom. I felt like all I did was argue with a toddler all day long. It was really hard. I know that your DH isn't with you so this makes it alot harder. At that point in my childrens life, my DH worked 15-18 hour days so I do know the feeling. By the time he arrived home he fell right to sleep. And back to square one in the morning. I'm thinking that you need to find someone to watch him a few times a week. Maybe someone through your church or a friend. It may even be easier once hes in bed, but you need your time Hiedi. My mom always told me and I do believe this is so true, It's not the quanity of time you spend with your children its the quality! When our nerves are shot, we have a hard time with our children. Many e-hugs :)


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